FOP: Enhancing Diagnosis and Management to Improve Patients’ Quality of Life
April 24, 2023
August 17, 2024
Orthopedics, Endocrinology, Rheumatology, Pediatrics, Genetics, Dermatology
FOP, Fibrodysplasia ossificans progressiva
Jointly provided by Partners for Advancing Clinical Education (PACE) and PlatformQ Health Education, LLC (PQHE), in collaboration with the National Organization for Rare Disorders, Inc. (NORD) and the International Fibrodysplasia Ossificans Progressiva Association (IFOPA) and the Rare Bone Disease Alliance (RBDA).
This activity is supported by an independent medical educational grant from Regeneron Pharmaceuticals, Inc.
Date of Release/Expiration
This activity was released on April 24, 2023 and is valid until August 17, 2024. Requests for credit must be made no later than August 17, 2024.
- Physicians — maximum of 1.0 AMA PRA Category 1 Credit(s)™
All other healthcare professionals completing this course will be issued a statement of participation.
The educational design of this activity addresses the needs of the primary audience of orthopedists, bone specialists, rheumatologists, pediatric rheumatologists, and genetic counselors, and the secondary audience of PCPs, pediatricians, dermatologists, endocrinologists, occupational therapists, oncologists, general practice NPs and PAs, and specialist NPs and PAs.
Because fibrodysplasia ossificans progressiva, or FOP, is exceedingly rare, even specialists such as orthopedists, endocrinologists, and rheumatologists can miss its early manifestations. The result may be missed opportunities for proper management, including avoidance of flare-up–inducing trauma. Specialists who see patients with FOP must have up-to-date knowledge regarding its cardinal signs and symptoms, diagnosis, and management.
Join a panel of clinical experts in FOP and a representative from the International FOP Association (IFOPA) to help ensure clinicians recognize FOP manifestations, make a timely diagnosis, and provide guideline-driven care. Panelists will discuss the early signs of FOP and evolving patient presentations as the disease progresses, the underlying pathophysiology and the role of activin A, and precautions that must be taken when providing routine care for FOP, including immunizations and dental care.
Upon completion of this activity, participants should be better able to:
- Recognize early hallmark signs and symptoms that may be conducive to a diagnosis of FOP
- Describe the disease course of FOP, possible triggers for flare-ups, and their impacts on patients’ and caregivers’ quality of life
- Summarize the underlying pathophysiology of FOP, including its genetic causes, the role of activin, and how it affects bone formation
- Implement a management plan that includes trauma avoidance, medication, and rehabilitative and palliative care as the disease progresses
- Explain strategies to reduce risk of flare-up during routine care visits, such as visits for immunization, injection, dental work, or surgery
Edward Hsiao, MD, PhD
Division of Endocrinology and Metabolism
University of California, San Francisco
Director, UCSF Metabolic Bone Clinic
Hope Newport, MA, CCLS
Family Services Manager
International FOP Association
International FOP Association
Joint Accreditation Statement
In support of improving patient care, this activity has been planned and implemented by Partners for Advancing Clinical Education (PACE) and PlatformQ Health Education, LLC. PACE is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
Physician Continuing Education
PACE designates this enduring material for a maximum of 1.0 AMA PRA Category 1 Credit™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
Estimated Time to Complete
This activity should take approximately 60 minutes to complete.
Instructions to Receive Credit
In order to receive credit for this activity, the participant must (1) read the target audience, learning objectives, and disclosure statements, (2) complete the educational activity online, and (3) complete the post-test and activity evaluation. To receive AMA PRA Category 1 Credits™, participants must receive a score of 75% on the post-test.
Fee Information & Refund/Cancellation Policy
There is no fee for this educational activity.
Disclosures of Conflicts of Interest
PACE requires instructors, planners, managers, and other individuals who are in a position to control the content of this activity to disclose all financial relationships they may have with ineligible companies. All relevant financial relationships are thoroughly vetted and mitigated according to PACE policy. PACE is committed to providing learners with high-quality accredited CE activities and related materials that promote improvements or quality in healthcare and not a specific proprietary business interest of an ineligible company.
The faculty reported the following relevant financial relationships or relationships to products or devices they have with ineligible companies related to the content of this educational activity:
- Edward Hsiao, MD, PhD
- Researcher: Ipsen Pharmaceuticals, Ultrageny
- Hope Newport, MA, CCLS
- No relevant financial relationship(s) to disclose.
- Michelle Davis
- No relevant financial relationship(s) to disclose.
- Sharon Kantanie
- Interview participant – Patient with FOP: No relevant financial relationship(s) to disclose.
The PACE planners and others have no relevant financial relationship(s) to disclose with ineligible companies. The PlatformQ Health Education, LLC planners and others have no relevant financial relationship(s) to disclose with ineligible companies.
Disclosure of Unlabeled Use
This educational activity may contain discussion of published and/or investigational uses of agents that are not indicated by the FDA. The planners of this activity do not recommend the use of any agent outside of the labeled indications.
The opinions expressed in the educational activity are those of the faculty and do not necessarily represent the views of the planners. Please refer to the official prescribing information for each product for discussion of approved indications, contraindications, and warnings.
Participants have an implied responsibility to use the newly acquired information to enhance patient outcomes and their own professional development. The information presented in this activity is not meant to serve as a guideline for patient management. Any procedures, medications, or other courses of diagnosis or treatment discussed or suggested in this activity should not be used by clinicians without evaluation of their patient’s conditions and possible contraindications and/or dangers in use, review of any applicable manufacturer’s product information, and comparison with recommendations of other authorities.
Course Viewing Requirements
Internet Explorer 8.0+ for Windows 2003, Vista, XP, Windows 7, Windows 8.1 and above
Google Chrome 28.0+ for Windows, Mac OS, or Linux
Mozilla Firefox 23.0+ for Windows, Mac OS, or Linux
Safari 6.0+ for Mac OSX 10.7 and above
Supported Phones & Tablets:
Android 4.0.3 and above
iPhone/iPad with iOS 6.1 or above
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