Rare Diseases & the Non-Physician Provider: Expert Guidance on Recognizing & Managing LSDs

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9/25/20 1:00 pm EST
Virtual Webinar
United States


This webinar is jointly provided by the Postgraduate Institute for Medicine and Enquiring Minds LLC.

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This activity is supported in part by an independent education grant from Sanofi Genzyme.

Join Dawn Laney in this free live virtual webinar as she offers expert guidance on recognizing and managing LSDs.

Webinar Overview:

Make real-world decisions and implement expert guidance as you answer diagnostic and therapeutic questions Topics will include:

  • Differential diagnosis: common characteristics and symptom overlap, spectrum of disease, target patient populations
  • Available and investigational treatments: target patient populations, safety-efficacy profiles, evidence-based recommendations
  • Patient-centered considerations: newborn screening and laboratory testing, potential familial impact, timing and types of treatment, adherence, communication

Target Audience

This activity is intended for genetic counselors, physician assistants, nurse practitioners and registered nurses engaged in the care of patients with rare diseases and lysosomal storage disorders.

Date and Time:

This webinar will be held on

  • Friday, September 25, 2020 1:00 PM – 2:00 PM EDT


Dawn A Laney, MS, CGC, CCRC

Assistant Professor and Director
Emory Genetic Clinical Trials Center
Program Leader
Emory Lysosomal Storage Disease Center
Genetic Counselor/Instructor
Emory University School of Medicine
Atlanta, GA

Kara Anstett, MS, CGC

Genetic Counselor
Department of Neurology
NYU Langone Health


  • Physicians — maximum of 1.0 AMA PRA Category 1 Credit(s)
  • Nurses — The maximum number of hours awarded for this Continuing Nursing Education activity is 1.0 contact hours.
  • All other health care professionals completing this course will be issued a statement of participation.

Joint Accreditation Statement

In support of improving patient care, this activity has been planned and implemented by the Postgraduate Institute for Medicine and Enquiring Minds, LLC. Postgraduate Institute for Medicine is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.


Credit Designation

Physician Continuing Medical Education

The Postgraduate Institute for Medicine designates this live activity for a maximum of 1 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Genetic Counselors

If you are a Genetic Counselor, you may claim participation in this activity under AMA credit. Your certificate will show that you have participated in this activity and that the activity was awarded for AMA PRA Category 1 Credits™. You may submit this certificate to your governing body for Genetic Counseling continuing education credit.

Continued Nursing Education

The maximum number of hours awarded for this Continuing Nursing Education is 1.0 contact hours.

Faculty Disclosures

Dawn Laney

  • Receives fees from non-CME/CE services received directly from a commercial intereste or their agents: Sanofi Genzyme and Amicus Therapeutics
  • Ownership interest: ThinkGenetic Inc.

Kara Ansteet

  • Received consulting fees from Amicus

  • Receives fees from non-CME/CE services received directly from a commercial intereste or their agents from Sanofi Genzyme

Planners and Managers

The PIM planners and managers have nothing to disclose. The Enquiring Minds planners, managers and medical writers have nothing to disclose.

Instructions for Participation and Credit

Participation in this activity is free. Understand the material, pass the intra-activity questions and complete an evaluation to receive credit. Passing grade is 50% and you are limited to 5 attempts. There are no fees for participating and receiving CME credit for this enduring activity. To receive CME credit participants must:

  1. Read the CME/CE information and faculty disclosures.
  2. Participate in the online activity.

Certificates will be emailed to the participant.

Disclosure of Unlabeled Use

This educational activity may contain discussion of published and/or investigational uses of agents that are not indicated by the FDA. The planners of this activity do not recommend the use of any agent outside of the labeled indications. The opinions expressed in the educational activity are those of the faculty and do not necessarily represent the views of the planners. Please refer to the official prescribing information for each product for discussion of approved indications, contraindications, and warnings.


Participants have an implied responsibility to use the newly acquired information to enhance patient outcomes and their own professional development. The information presented in this activity is not meant to serve as a guideline for patient management. Any procedures, medications, or other courses of diagnosis or treatment discussed or suggested in this activity should not be used by clinicians without evaluation of their patient's conditions and possible contraindications and/or dangers in use, review of any applicable manufacturer's product information, and comparison with recommendations of other authorities.