First Do No Harm: Realizing Timely Diagnosis and Treatment for Patients with Fibrodysplasia Ossificans Progressiva

This web activity provides an overview of the estimated frequency and impact of erroneous/delayed FOP diagnosis, a review of how to use clinical evaluations and/or genetic testing to make an accurate and timely diagnosis, the importance of timely medical management to improve outcomes, and the importance of identifying at-risk family members.