DRAVET SYNDROME: TRANSITION FROM PEDIATRIC TO ADULT CARE

Target Audience

The educational design of this activity addresses the needs of neurologists, pediatric neurologists, epileptologists, pediatric epileptologists, pediatricians, primary care providers, general practitioners, nurses, nurse practitioners, physician assistants, and pharmacists involved and/or interested in the management of patients with DS.

Statement of Need/Program Overview

The transition of care from a pediatric to an adult setting is an increasingly critical time in the management of Dravet syndrome (DS). Unfortunately, many who have been through the transition process express dissatisfaction with the quality of the experience and with outreach from providers. Clinicians need to be comfortable formulating an individualized transition plan for their patients and communicating with patients, caregivers, and families to ensure that the plan is understood and agreed upon.

Join an expert panel of clinicians and caregivers for an exploration of the transition from adolescent to adult care in DS. Faculty will review the timing of the transition process, the identification of appropriate clinicians to receive transitioning patients, and communication strategies to ensure patients and caregivers understand and are involved in the transition process. The importance of dedicated roles, such as a Transition Navigator, on the care team will also be discussed.

Learning Objectives

After completing this activity, the participant should be better able to:

• Describe the consequences of a delayed diagnosis of DS such as in adults with DRE
• Describe the unique seizure and non‐seizure related needs of adult patients with DS
• Devise strategies to address challenges related to transitioning from pediatric to adult multidisciplinary care
• Identify tools and support groups to assist caregivers in providing care for an individual with DS and transitioning from pediatric to adult care